So.. This is what's been going on. My knees are MASSIVE and AGONY. My gp thinks I have ulcers in the back's of my knees, I'm waiting on an emergency referal.. meanwhile I cant walk, am in huge amounts of pain, and my kneecaps are in the wrong place the whole time! They're getting worse by the day. Meanwhile they've put me on morphine, with strict instructions that if my heart bothers me AT ALL I have to go to AandE (urgh.) Anyone with EDS knows how frustrating, traumatic and often futile that can be, as alot of doctors have never heard of EDS or they think its 'just' hypermobility or 'just' stretchy skin, they have no idea the extent of the complications and mostly you just end up trying to convince them you're not just a hypochondriac or flat out mental. As if I'd chose this for christs sake. Anyways, quite dosed up so not typing great, going to get back to 'resting' hahaha ironic word to me, that. Will report in when I know anything else, enjoy the gross photos taken earlier today (my poor pins!!!)
Nearly forgot, huge thankyou goes out to my friends William and Kirsty for practically carrying me to and from the gp, not letting me out of their sight, running around like blue-arsed flies to make sure I have everything I need, and actually managing to keep me vaguelly cheerful despite everything.... I cant thank you guys enough, Much love, Emma x
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