
Hello my friends, sorry to have been absent so long, lost in a sea of endless appointments and stress with alot of being stuck in my bed, I hope a few have stuck around to keep reading!
I really wish I had possitive stuff to say, I’ll list a few useful things that have occured in the time I’ve been absent..
Finally found a pain clinic that IS NOT staffed by ignorant fools and who are actually helping me with various things to tackle the pain and also a rethinking and gradual changing of my medications etc (cannot express the joy I have about the non-evil pain clinic, after 10 years of nonsense and being sneered at, disbelieved, even post diagnosis, to have ‘real’ pain, the difference in help provided is astonishing...! ) Tomorrows pain management plan deals with sleep issues (good timing too insomnia obviously waited right up until I started thinking “you know what, getting up early, and doing all those millions of things that make my a tiny bit closer to comfort and getting to bed early and everything else is sorting my sleeping right out!”... WRONGGGGG. *Eats hat and weeps (and suspects the constant friggin’ bombardment of helicopter racket at 2am onwards here is a culprit? Selfish, war-mongering, fascist noise- poluters!!!).. I need sleep L*
Finally getting somewhere with my care/disability help/ total lack of a life thanks to being sucked dry by a huge leaching creature known as chronic illness, think I may have some hope of a vaguelly bearable life soon, yey one up for persistant, pleasant nagging.
And my two favourite people turned 5 :P
Also, best of all in my view anyways.. I finally have my beautiful, amazing, ingenious ring splints! Will upload photos and big explanation of the whats, whos, hows and whys of rings splints asap, suffice to say they are brilliant.
Still awaiting results of mri re possible chiari.. will update when I know.
Anyone who wants to cheer me up, message or email your favourite pun/s, I am addicted to puns, the worse the better, and I’m not ashamed to say it! so share the love people, I need cheering up.
Love x

No comments:
Post a Comment
Note: only a member of this blog may post a comment.