Hello! Sorry I've been absent of late, as you know I've been having alot of bother with my knees. The last two weeks have been hell on toast, wouldnt have made it through without my amazing friends and family providing 24 hr care, taking me to appointments, travelling to see me, doing shopping for me, taking care of my pets, taking care of my house etc. I had a serious battle with the nhs to get some help, and have only seen a doctor other than my GP because my lovely mum paid for a private doc, as my 'urgent' nhs referal isnt until mid July!!! I cant even get a temporary wheelchair or another walking stick (my walking stick has a right handed only handle and my right wrist which already causes me alot of pain is swollen and damaged from just using my stick to get to the loo and back) The doc said my popliteal glands in my knees are swollen but just battling on is the only option right now as steriod injections are problematic as local anasthetic is ineffective on me (another EDS symptom) Waiting for prescription for fybromyalgia meds that may help, meanwhile easing off the morphine as the pain is lessening (though nights are still bad,.. it's a mystery why my EDS is always more problem at night too) and mobility slowly returning. Here's photo's of how they're looking...
Also, to show you how well I've been looked after here's a couple of snaps of some of the lovely grub I have had presented to me in my sickbed this last 2 weeks (grub credits (lol)..pasta-james, cherries and yogurt snacks-aoife, burger, chips, salad etc-william) I want to send many thanks to Willaim, Aoife, Jo, Fil, James, Kirsty, Ellie, all my friends and family who sent me messages and of course my brilliant Mum, for taking such amazing care of me and keeping me sane! Special thanks to William who has taken on the bulk of the work taking care of me and without whom I think I'd have gone mental-fruitloops... Thanks green-eyes xx
Still stuck in bed and in need of alot of help but atleast feeling better, had some really rough times the last 2 weeks including trying out a medication that made me throw up ALOT all day :( the morphine has it's own delightful side effects including halucinations (maybe I'll paint some up lol) and two migraines made themselves known during that time too.. overall I'm bored senseless stuck in my bed... and I've felt as rough as a badgers arse.
Hopefully my recovery will be speedy and I can enjoy some summer before it's gone!!!
Emma xx
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