Another friday night... ( ... /monday morning)

Well, what a week..

I had to basically cancel every single plan from large to small, necessary to leasure based.. all cancelled because I have a cold. That's one of the majorly annoying things about having EDS, the fact that a cold or bug can totally knock me for six. Not alot to tell, or alot of typing left in my hands, but wanted to upload some random images from my week...





And... I wanted to introduce you all to my friend's new kitty, Mr. Darcy.. is he not the cutest?!




xx

simple painting

Hello,
Not much to say today except ow, again.. EVERYTHING hurts. I did manage to do this simple painting, simple isnt really my style but I am quite pleased with it. Sorry about dreadful quality of image, had to take photo on phone as currently scanner-less :(

Anyways, Night x

ow...

Hello,
I've not alot to say today except ow, ow, ow. So, instead, here's some photos.. A flower I grew, a sketch I did, my knees that hurt and my friend William being impressed by me managing for the first time in weeks to actually cook a meal (with help, but still I did most of it) Thats about all I have managed yet, but the week is young.
Night x

EDS lonely hearts

Hello again..

Sometimes I just have more to say.

Mum would say I always do haha. Even though typing (and every other bleedin thing I could possibly want to do) hurts like hell today I'm typing anyways, my irritiation with my massive knees and being stuck in the house so much means I have to have a rant every so often... and I think my jaw is going all wrong, which is worrying, and very painful :(

Anyways, for my amusement I have written this lonely hearts ad, cant wait for the offers to start flooding in hahahaha!....

Wanted:
Gorgeous, devestatingly intelligent, limitlessly kind and resiliant man sought.
Must be oblivious to own awesomeness to facilitate not minding spending half of time sitting in hospital waiting rooms/ pushing wheelchair/ holding my hand through hours/days/weeks/months/years of endless agony.
Must be willing to suffer a minimal/nonexistent sexlife, and able to cope with my complete disbelief that that does not equal a minimal/nonexistent interest in me.

Time wasters/insane blokes need not apply. No dss.

House/flat desperation!!!

This is my view of the world right now, glipsed from a car window...





Hello,
House hunting when you're disabled is a NIGHTMARE!!!! Apparently they think it's ok to talk to you like dirt, repeatedly telling me that disabled housing through the council is my only option (NOT true, for starters the disabled housing is all miles away from my support structure, and also all the adaptions that I require can be temporary and need cause no damage or inconvenience to anyone.. I dont see what the problem is? It's not like it's catching.) leaving me standing around in agony waiting outside houses only to find you've been stood up!!! (pm me if you want to avoid that particular agency and I'll let you know who it was, though theyre all pretty bad arnt they?!) Trying with all my minimal might to find a local landlord who doesnt insist I throw money away dealing with incompitent middlemen leaches, sorry, estate agents, and then we can have a rational, fair, respectful arrangement and I can get back to being able to leave my home without help (ie no longer housebound, which frankly, is wearing thin... as is my patience with pretty much everything...)

On other issues, my torture, sorry, exercise program is going well, and I am showing improvement in muscle in my shoulders and back especially, and my poorly wrist (thank god!) Though my knees are showing up the rest of me by refusing to go back to 'normal' no matter what is tried... it's a real mystery. And after 3 months.. a real pain in the you-know-what too.

Aside from that I'm tired, uninspired, huffy and restless... actually I think that is quite apparent! Going to soak my old bones in the bath for an hour or three, my love goes out to all EDS people, I hope you are having a low pain-high mobility day, and to all my friends who keep me sane and all my family who make sure I dont go too sane (hahaha!) and especially to William for getting me out of the house today x

Goodnight all x

Good Riddance!!!

Hello,
Just a brief update tonight/tomorrow morning.. Just wanted to express my huge relief at having finally finished my disability benefits forms, it was an epic task and took me a looooooong time to make myself deal with it, to find the time, to physically do it as writing is very painful and to stomach the making-it-official-ness of the whole blasted process. If I wasnt so damn proud I could have had help with it, plenty was offered, but in a way I'm glad I did it majoritively by myself.... I can accept little praise for getting it done as it should have been finished over a year ago, but nevertheless I am delighted with myself simply for the fact I wont have to stare at that massive pile of medical paperwork anymore! JOY!

Speaking of joy, here is an image all artists can appreciate the beauty of.... new pencils :) yummy!


As for my health, that isnt so joyous, nothing much has changed since my last rant, though it feels more immediately problematic the more cabinfever I experience.. I need to find a new home that has better access and a garden, if I'm going to be stuck inside so much I want atleast my own bit of accessable outdoors. I'm bored senseless with having bad knees, it has been three months now... I wish I knew what treatment might do something to lessen the swelling...


I used to have really nice pins damnit!!!!

Atleast I have a forms-free desk, what a treat :) Well 4am is a shocking time to still be up I had best try-to-sleep , night night x

Hotmail

Has anyone else notices that hotmail has gone from a perfectly fine functioning email account, to a stupid glitchy mincy pile of shit with all kinds of extras.. that make it NOT WORK!!!! ARGH!! I will be sacking off hotmail within a week if they dont do something to fix the cack handed mess they have made tying to guild the lily.

Grrrr that has made me so cross.. if it works why change it?!?!?!??!