Hello,
House hunting when you're disabled is a NIGHTMARE!!!! Apparently they think it's ok to talk to you like dirt, repeatedly telling me that disabled housing through the council is my only option (NOT true, for starters the disabled housing is all miles away from my support structure, and also all the adaptions that I require can be temporary and need cause no damage or inconvenience to anyone.. I dont see what the problem is? It's not like it's catching.) leaving me standing around in agony waiting outside houses only to find you've been stood up!!! (pm me if you want to avoid that particular agency and I'll let you know who it was, though theyre all pretty bad arnt they?!) Trying with all my minimal might to find a local landlord who doesnt insist I throw money away dealing with incompitent middlemen leaches, sorry, estate agents, and then we can have a rational, fair, respectful arrangement and I can get back to being able to leave my home without help (ie no longer housebound, which frankly, is wearing thin... as is my patience with pretty much everything...)
On other issues, my torture, sorry, exercise program is going well, and I am showing improvement in muscle in my shoulders and back especially, and my poorly wrist (thank god!) Though my knees are showing up the rest of me by refusing to go back to 'normal' no matter what is tried... it's a real mystery. And after 3 months.. a real pain in the you-know-what too.
Aside from that I'm tired, uninspired, huffy and restless... actually I think that is quite apparent! Going to soak my old bones in the bath for an hour or three, my love goes out to all EDS people, I hope you are having a low pain-high mobility day, and to all my friends who keep me sane and all my family who make sure I dont go too sane (hahaha!) and especially to William for getting me out of the house today x
Goodnight all x
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